Lenkaland

Episode 34 Show Notes

Good times from the Crash-Zone .  I had a blast at our family gathering this weekend.  Today I feel like the landscape after a storm.  Quiet and still and needing lots of repairs

I had this idea last week.  I thought about all of the things that surprised me along this journey.  I wanted a Hidden Manual: Stuff No One Told Me.  About disability and CMT.  Stuff like brain-chemistry and fatigue.  Managing finances.  Grieving.  Holding relationships together.

And, on the sunshine-side, empathy and creativity.  Strength and appreciation.

So I share.  And this episode comes from a real place, where I’m coping with the fallout from my fun weekend.  If you wonder what it’s like for those of us with CMT on our crash days, this is the episode.  I’ve heard these times called the crash or the payback, aftermath or fall-out.  They are the days after activities.  What do they feel like?

Like the day after Disneyland

the land after a storm

Like sleeping all night in the forest

on a bed of rocks

Like helping a friend move

from a third floor apartment

without an elevator

Like the day after the flu

when you’re no longer sick

and not quite well

Like dancing all night

when you only danced one song

Like a dream gone wrong

A punishment you don’t deserve

And a reminder that life is very precious

our time is valuable

and you must spend it wisely

doing nothing

for today anyway

You hope to feel better tomorrow

and you might

but you also might not

rest and see

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