Lenkaland

Lenkaland is home to the Disability Community Podcast.  My goal is to support and inspire extraordinary people and families. I believe that if we change our perspectives, we can change the world.  We are in a golden age for accessibility.

I want to build a community where disability is not a tragic, sad fate.  I want a community where we celebrate differences in physical and mental abilities.  I want a community where I do not hold a vision of “normal” as a model of success, where I do not wear myself out trying hide my challenges.

I want a community where people are not compelled to ‘overcome’ their disability.  Where respect, healthy limits, and helping the world meet us halfway are wonderful ideas.  I want disability to be a dance rather than an obstacle.  I want disability to be a chance to grow, to change, to understand ourselves and each other better.  I want disability to enrich our lives and never-ever diminish them.

Long ago, I read about an author explaining his stories.  I write about ordinary people coping with extraordinary circumstances.

Well, I am the opposite.  I am extraordinary in an ordinary life.  I have a genetic condition called Charcot Marie Tooth Disease.  I am extraordinary because all the ordinary things are in my world- work, bills, family.  And yet I have an extra something on my plate, an extra helping that could break me . . . or inspire me.

I don’t get to choose my chronic condition.  I choose how I live with it.

There are many paths through life, and disability changes the landscape, but it doesn’t have to be doom and gloom.  We all have our own journey.  Let’s make the most of the path we’re on.

That is my mission. Let the adventure begin!

I wrote an article in 2005 about accepting the changing symptoms of CMT.  Click here to read My Quiet Monsters.

Further adventures may appear at Lenkaland soon . . . depending how much the baby lets me sleep

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