Comments for Lenkaland http://lenkaland.com my creative life with hereditary neuropathy Mon, 07 May 2012 15:05:08 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Speak Up? Or Step Up? by Alex http://lenkaland.com/making-waves/comment-page-1/#comment-12078 Alex Mon, 07 May 2012 15:05:08 +0000 http://lenkaland.com/awkward-moment-1/#comment-12078 This is a great post. Thank you and <a href="http://google.com/" rel="nofollow">Google</a> for chance to read it. This is a great post. Thank you and Google for chance to read it.

]]> Comment on Contact by Lenka http://lenkaland.com/contact/comment-page-1/#comment-11819 Lenka Mon, 30 Apr 2012 00:31:53 +0000 http://lenkaland.com/?page_id=2078#comment-11819 Thank you, Sarah! I look forward to getting to know you at school! I am a big supporter of homeschooling. Education needs to be flexible and responsive to kid's needs. I am very open to the idea of homeschooling my girl if school gets too stressful or overwhelming. I will look into the book for sure- thank you! Best wishes! Lenka Thank you, Sarah! I look forward to getting to know you at school! I am a big supporter of homeschooling. Education needs to be flexible and responsive to kid’s needs. I am very open to the idea of homeschooling my girl if school gets too stressful or overwhelming. I will look into the book for sure- thank you!

Best wishes!
Lenka

]]> Comment on Contact by Sarah http://lenkaland.com/contact/comment-page-1/#comment-11814 Sarah Sun, 29 Apr 2012 19:03:41 +0000 http://lenkaland.com/?page_id=2078#comment-11814 Lenka, Great blog! Thank you for telling about your daughter's journey with dyslexia. My third grader has a similar story and I understand the relief that can come with the diagnosis. I also am a teacher, currently homeschooling my daughter and a couple more students. I visited your classroom, which I loved, a couple months ago and will have a son in kindergarten at your school next year. I wanted to pass on a resourceful book that helped me to better understand how my daughter's brain works, with its unique challenges and powerful strengths, in case you have not heard about it yet: The Dyslexic Advantage, by Brock Eide, MD and Fernette Eide MD. I appreciate all that you share, your story, your daughter's, the art... Many thanks, Sarah Lenka,
Great blog!
Thank you for telling about your daughter’s journey with dyslexia. My third grader has a similar story and I understand the relief that can come with the diagnosis. I also am a teacher, currently homeschooling my daughter and a couple more students. I visited your classroom, which I loved, a couple months ago and will have a son in kindergarten at your school next year.
I wanted to pass on a resourceful book that helped me to better understand how my daughter’s brain works, with its unique challenges and powerful strengths, in case you have not heard about it yet: The Dyslexic Advantage, by Brock Eide, MD and Fernette Eide MD.
I appreciate all that you share, your story, your daughter’s, the art…

Many thanks,
Sarah

]]> Comment on A New Path with Dylslexia by Mosey handmade http://lenkaland.com/newpathdylslexia/comment-page-1/#comment-10302 Mosey handmade Mon, 12 Mar 2012 00:30:51 +0000 http://lenkaland.com/?p=6262#comment-10302 Beautiful post and very informative. Beautiful post and very informative.

]]> Comment on A New Path with Dylslexia by Nickalli Braaten http://lenkaland.com/newpathdylslexia/comment-page-1/#comment-10014 Nickalli Braaten Tue, 28 Feb 2012 14:46:35 +0000 http://lenkaland.com/?p=6262#comment-10014 You have a long road ahead of you, but although there are going to be many places to stumble along the way - the journey is going to be so gratifying for all of you! My beautiful, intelligent goddaughter has dyslexia and is in her 2nd year of college. It wasn't caught until much later and she was homeschooled for years before they figured it out. Now, she gets additional help with school and is doing fantastic - but reading is still exhausting for her and she does struggle with headaches if she tries to push past her limits. You will all be fine, just remember it is a lifetime process. My goddaughter is an amazing young woman and I think if asked would not trade her experiences as they have made her intelligent and strong is so many ways others will never know. My heart is with you and your family! You have a long road ahead of you, but although there are going to be many places to stumble along the way – the journey is going to be so gratifying for all of you!

My beautiful, intelligent goddaughter has dyslexia and is in her 2nd year of college. It wasn’t caught until much later and she was homeschooled for years before they figured it out. Now, she gets additional help with school and is doing fantastic – but reading is still exhausting for her and she does struggle with headaches if she tries to push past her limits.

You will all be fine, just remember it is a lifetime process. My goddaughter is an amazing young woman and I think if asked would not trade her experiences as they have made her intelligent and strong is so many ways others will never know. My heart is with you and your family!

]]> Comment on A New Path with Dylslexia by Melissa Arakaki http://lenkaland.com/newpathdylslexia/comment-page-1/#comment-10000 Melissa Arakaki Tue, 28 Feb 2012 01:08:08 +0000 http://lenkaland.com/?p=6262#comment-10000 It is a relief to get a diagnosis, even when it's a tough one. My oldest son was diagnosed with ADHD and ODD almost two years ago. He is amazingly bright, scores high on all testing....but getting him to focus and deal with the behavioral issues has been an uphill battle. Good luck with everything....she is a beautiful girl!! It is a relief to get a diagnosis, even when it’s a tough one. My oldest son was diagnosed with ADHD and ODD almost two years ago. He is amazingly bright, scores high on all testing….but getting him to focus and deal with the behavioral issues has been an uphill battle. Good luck with everything….she is a beautiful girl!!

]]> Comment on Bikes at the Park by Stephanie http://lenkaland.com/bikes-at-the-park/comment-page-1/#comment-9213 Stephanie Fri, 03 Feb 2012 14:53:55 +0000 http://lenkaland.com/?p=6153#comment-9213 In short sleeves, even! Looks like a lovely day for Out. I'm in the very beginnings of spring fever, I think. Just starting to be ready for non-freezing walks. In short sleeves, even! Looks like a lovely day for Out.
I’m in the very beginnings of spring fever, I think. Just starting to be ready for non-freezing walks.

]]> Comment on CMT and Being Sick by Lenka http://lenkaland.com/cmt-and-being-sick/comment-page-1/#comment-8675 Lenka Fri, 13 Jan 2012 03:49:22 +0000 http://lenkaland.com/?p=5989#comment-8675 Thank you so much for your note- it made my day! It can feel pretty quiet out here sometimes :). I know your feeling that, "at last you have answers." And now you can finally try strategies that might help. What I've learned on my journey is that there is no end-place, the journey goes on. Hopefully we can keep being here for each other through the rough patches. And celebrate the fun times, too. Off to get ready for tomorrow's teaching-day. Just wanted to write quick because I really really appreciated you sharing your story. I hope your next chapter is healthy and fun! Smiles, Lenka Thank you so much for your note- it made my day! It can feel pretty quiet out here sometimes :) . I know your feeling that, “at last you have answers.” And now you can finally try strategies that might help. What I’ve learned on my journey is that there is no end-place, the journey goes on. Hopefully we can keep being here for each other through the rough patches. And celebrate the fun times, too.

Off to get ready for tomorrow’s teaching-day. Just wanted to write quick because I really really appreciated you sharing your story. I hope your next chapter is healthy and fun!

Smiles,
Lenka

]]> Comment on CMT and Being Sick by jeff http://lenkaland.com/cmt-and-being-sick/comment-page-1/#comment-8671 jeff Thu, 12 Jan 2012 20:50:44 +0000 http://lenkaland.com/?p=5989#comment-8671 Thank you for the transparency and information found in this page. I am 45 years old and have lead a very active life but over the last ten years always found myself more tired than ever, unable to sustain vigorous routines, and feeling the constant and progressively worsening of numbness and tingling in my extremities. Visiting doctors to find out what was the matter, they concluded I was stressed, had administrative tendencies that were too analytical especially towards the diagnosis and treatments, and even recommended prescriptions to treat a perceived depression. After all these years, my family doctor, a wonderful new doctor I had recently visited, told me to see a neurologist who did all the tests necessary to conclude that I had CMT Type 2. I was in my family doctor's office one day recently and told her that if you can find out why I feel more awful after I excercise, you will solve the mysterious problem I have been experiencing. Sure enough. She did. I was not stunned at all at the diagnosis. It was actually a relief. The thing that helps me at this time is to remember that, I didn't catch it, I had it! Looking back, I can see the progression as clear as a sunny day now that the pieces have been put together for me. After reading everything I can put my hands on during the last month, I found your site and it is as if I could have written it myself. It was me exactly. Thank you for the time you have put into it and please know that I feel I can direct people to a place that understands what CMT is all about. The advice found here has already been helpful. Keep up the good work. Now, time to get back to living. Thank you for the transparency and information found in this page. I am 45 years old and have lead a very active life but over the last ten years always found myself more tired than ever, unable to sustain vigorous routines, and feeling the constant and progressively worsening of numbness and tingling in my extremities. Visiting doctors to find out what was the matter, they concluded I was stressed, had administrative tendencies that were too analytical especially towards the diagnosis and treatments, and even recommended prescriptions to treat a perceived depression. After all these years, my family doctor, a wonderful new doctor I had recently visited, told me to see a neurologist who did all the tests necessary to conclude that I had CMT Type 2. I was in my family doctor’s office one day recently and told her that if you can find out why I feel more awful after I excercise, you will solve the mysterious problem I have been experiencing. Sure enough. She did. I was not stunned at all at the diagnosis. It was actually a relief. The thing that helps me at this time is to remember that, I didn’t catch it, I had it! Looking back, I can see the progression as clear as a sunny day now that the pieces have been put together for me. After reading everything I can put my hands on during the last month, I found your site and it is as if I could have written it myself. It was me exactly. Thank you for the time you have put into it and please know that I feel I can direct people to a place that understands what CMT is all about. The advice found here has already been helpful. Keep up the good work. Now, time to get back to living.

]]> Comment on CMT and Being Sick by Lenka http://lenkaland.com/cmt-and-being-sick/comment-page-1/#comment-8654 Lenka Wed, 11 Jan 2012 21:21:58 +0000 http://lenkaland.com/?p=5989#comment-8654 Sorry to hear that you're feeling under the weather, too! It seems especially tough for us moms. Kiddos don't believe in 'sick days' for Mamas :) It's also tough because one day isn't enough. I thought I'd be back on track today and I'm still dragging. Oh, well. Trying to be kind to myself :) Sending good, get-better energy your way! Best wishes! Sorry to hear that you’re feeling under the weather, too! It seems especially tough for us moms. Kiddos don’t believe in ‘sick days’ for Mamas :)

It’s also tough because one day isn’t enough. I thought I’d be back on track today and I’m still dragging. Oh, well. Trying to be kind to myself :)

Sending good, get-better energy your way! Best wishes!

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