Comments for Lenkaland http://lenkaland.com my creative life with hereditary neuropathy Fri, 03 Feb 2012 14:53:55 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Bikes at the Park by Stephanie http://lenkaland.com/bikes-at-the-park/comment-page-1/#comment-9213 Stephanie Fri, 03 Feb 2012 14:53:55 +0000 http://lenkaland.com/?p=6153#comment-9213 In short sleeves, even! Looks like a lovely day for Out. I'm in the very beginnings of spring fever, I think. Just starting to be ready for non-freezing walks. In short sleeves, even! Looks like a lovely day for Out.
I’m in the very beginnings of spring fever, I think. Just starting to be ready for non-freezing walks.

]]> Comment on CMT and Being Sick by Lenka http://lenkaland.com/cmt-and-being-sick/comment-page-1/#comment-8675 Lenka Fri, 13 Jan 2012 03:49:22 +0000 http://lenkaland.com/?p=5989#comment-8675 Thank you so much for your note- it made my day! It can feel pretty quiet out here sometimes :). I know your feeling that, "at last you have answers." And now you can finally try strategies that might help. What I've learned on my journey is that there is no end-place, the journey goes on. Hopefully we can keep being here for each other through the rough patches. And celebrate the fun times, too. Off to get ready for tomorrow's teaching-day. Just wanted to write quick because I really really appreciated you sharing your story. I hope your next chapter is healthy and fun! Smiles, Lenka Thank you so much for your note- it made my day! It can feel pretty quiet out here sometimes :) . I know your feeling that, “at last you have answers.” And now you can finally try strategies that might help. What I’ve learned on my journey is that there is no end-place, the journey goes on. Hopefully we can keep being here for each other through the rough patches. And celebrate the fun times, too.

Off to get ready for tomorrow’s teaching-day. Just wanted to write quick because I really really appreciated you sharing your story. I hope your next chapter is healthy and fun!

Smiles,
Lenka

]]> Comment on CMT and Being Sick by jeff http://lenkaland.com/cmt-and-being-sick/comment-page-1/#comment-8671 jeff Thu, 12 Jan 2012 20:50:44 +0000 http://lenkaland.com/?p=5989#comment-8671 Thank you for the transparency and information found in this page. I am 45 years old and have lead a very active life but over the last ten years always found myself more tired than ever, unable to sustain vigorous routines, and feeling the constant and progressively worsening of numbness and tingling in my extremities. Visiting doctors to find out what was the matter, they concluded I was stressed, had administrative tendencies that were too analytical especially towards the diagnosis and treatments, and even recommended prescriptions to treat a perceived depression. After all these years, my family doctor, a wonderful new doctor I had recently visited, told me to see a neurologist who did all the tests necessary to conclude that I had CMT Type 2. I was in my family doctor's office one day recently and told her that if you can find out why I feel more awful after I excercise, you will solve the mysterious problem I have been experiencing. Sure enough. She did. I was not stunned at all at the diagnosis. It was actually a relief. The thing that helps me at this time is to remember that, I didn't catch it, I had it! Looking back, I can see the progression as clear as a sunny day now that the pieces have been put together for me. After reading everything I can put my hands on during the last month, I found your site and it is as if I could have written it myself. It was me exactly. Thank you for the time you have put into it and please know that I feel I can direct people to a place that understands what CMT is all about. The advice found here has already been helpful. Keep up the good work. Now, time to get back to living. Thank you for the transparency and information found in this page. I am 45 years old and have lead a very active life but over the last ten years always found myself more tired than ever, unable to sustain vigorous routines, and feeling the constant and progressively worsening of numbness and tingling in my extremities. Visiting doctors to find out what was the matter, they concluded I was stressed, had administrative tendencies that were too analytical especially towards the diagnosis and treatments, and even recommended prescriptions to treat a perceived depression. After all these years, my family doctor, a wonderful new doctor I had recently visited, told me to see a neurologist who did all the tests necessary to conclude that I had CMT Type 2. I was in my family doctor’s office one day recently and told her that if you can find out why I feel more awful after I excercise, you will solve the mysterious problem I have been experiencing. Sure enough. She did. I was not stunned at all at the diagnosis. It was actually a relief. The thing that helps me at this time is to remember that, I didn’t catch it, I had it! Looking back, I can see the progression as clear as a sunny day now that the pieces have been put together for me. After reading everything I can put my hands on during the last month, I found your site and it is as if I could have written it myself. It was me exactly. Thank you for the time you have put into it and please know that I feel I can direct people to a place that understands what CMT is all about. The advice found here has already been helpful. Keep up the good work. Now, time to get back to living.

]]> Comment on CMT and Being Sick by Lenka http://lenkaland.com/cmt-and-being-sick/comment-page-1/#comment-8654 Lenka Wed, 11 Jan 2012 21:21:58 +0000 http://lenkaland.com/?p=5989#comment-8654 Sorry to hear that you're feeling under the weather, too! It seems especially tough for us moms. Kiddos don't believe in 'sick days' for Mamas :) It's also tough because one day isn't enough. I thought I'd be back on track today and I'm still dragging. Oh, well. Trying to be kind to myself :) Sending good, get-better energy your way! Best wishes! Sorry to hear that you’re feeling under the weather, too! It seems especially tough for us moms. Kiddos don’t believe in ‘sick days’ for Mamas :)

It’s also tough because one day isn’t enough. I thought I’d be back on track today and I’m still dragging. Oh, well. Trying to be kind to myself :)

Sending good, get-better energy your way! Best wishes!

]]> Comment on CMT and Being Sick by Melissa Arakaki http://lenkaland.com/cmt-and-being-sick/comment-page-1/#comment-8642 Melissa Arakaki Wed, 11 Jan 2012 04:13:37 +0000 http://lenkaland.com/?p=5989#comment-8642 I'm sorry you're sick, but glad to hear that I'm not the only one fighting to get better! I am totally feeling the same thing, and having such a hard time feeling like I can get back on top of anything. My energy level is so low, and most days it takes a big pep talk to just get out of bed in the morning! Fingers crossed we both get back to "normal" soon! I’m sorry you’re sick, but glad to hear that I’m not the only one fighting to get better! I am totally feeling the same thing, and having such a hard time feeling like I can get back on top of anything. My energy level is so low, and most days it takes a big pep talk to just get out of bed in the morning! Fingers crossed we both get back to “normal” soon!

]]> Comment on Living with CMT, Day 34: Podcast! And Show Notes by Antoine Baptist http://lenkaland.com/podcastpost/comment-page-1/#comment-8622 Antoine Baptist Mon, 09 Jan 2012 06:25:01 +0000 http://lenkaland.com/?p=1708#comment-8622 Thank you for your article.Thanks Again. Really Great. Thank you for your article.Thanks Again. Really Great.

]]> Comment on Happy New Year by Lenka http://lenkaland.com/happy-new-year-3/comment-page-1/#comment-8531 Lenka Wed, 04 Jan 2012 21:12:28 +0000 http://lenkaland.com/happy-new-year-3/#comment-8531 Thank you! I am hoping for that for all of us! Happy New Year! Thank you! I am hoping for that for all of us! Happy New Year!

]]> Comment on Happy New Year by D. Nathan Hilliard http://lenkaland.com/happy-new-year-3/comment-page-1/#comment-8522 D. Nathan Hilliard Wed, 04 Jan 2012 16:24:24 +0000 http://lenkaland.com/happy-new-year-3/#comment-8522 Happy New Year, Lenka. Here's hoping 2012 is the best one yet :) Happy New Year, Lenka. Here’s hoping 2012 is the best one yet :)

]]> Comment on Deck the Halls! by Oli Dolly http://lenkaland.com/deck-the-halls/comment-page-1/#comment-7802 Oli Dolly Mon, 05 Dec 2011 20:03:19 +0000 http://lenkaland.com/?p=5865#comment-7802 You kids are way too cute !! And Anika looks a lot like u !! I love your Xmas tree :) My mom decorated everything in my apartment 2 weeks ago, I love the Xmas time so much !!! xoxo You kids are way too cute !! And Anika looks a lot like u !! I love your Xmas tree :) My mom decorated everything in my apartment 2 weeks ago, I love the Xmas time so much !!!
xoxo

]]> Comment on Challenges of Writing from a Disability Perspective by Lenka http://lenkaland.com/challenges-of-writing-from-a-disabilty-perspective/comment-page-1/#comment-7653 Lenka Fri, 02 Dec 2011 06:50:51 +0000 http://lenkaland.com/?p=5702#comment-7653 Hi Una! You inspire me to write fiction again :). I do like stories in that gray-zone that is full of questions without answers (a little like my life :)). Where they can search and search for a solution and they can make all the right choices, and be good, and honorable, and true . . . and still not find what they're seeking. Because, really, the journey defines us. Thank you for sharing the journey with me :) I just found it fascinating in my literature classes because I didn't even know that I saw the world and stories differently. I thought that we all shared a common story. Not so much :). Now I'm proud to share my skewed perspective. Wishing you happy endings :) Lenka Hi Una! You inspire me to write fiction again :) . I do like stories in that gray-zone that is full of questions without answers (a little like my life :) ). Where they can search and search for a solution and they can make all the right choices, and be good, and honorable, and true . . . and still not find what they’re seeking. Because, really, the journey defines us.

Thank you for sharing the journey with me :)

I just found it fascinating in my literature classes because I didn’t even know that I saw the world and stories differently. I thought that we all shared a common story. Not so much :) . Now I’m proud to share my skewed perspective.

Wishing you happy endings :)
Lenka

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