Truth: CMT symptoms (or any disability symptoms) do no take vacations. If anything, they are aggravated by vacation. Different places, different schedules, different expectations. I see how carefully I manage my day-to-day life when I step away from the crafted routines. At the same time, I am defiance. I am the next experience. The challenges are opportunities to create memories that last through rough days. The moments are most important.
Finding the space to enjoy these times may add to my careful management. But it's worth the effort. I am lucky to have an understanding family. We take frequent breaks. We keep the schedule light (one or two activities a day). I find that I need a few hours in the afternoon to recharge.
Life doesn't have to be easy to be wonderful. I am so enjoying the time together. We are laughing. Swimming. Creating memories. And that's the most important thing of all. Live life :)
Challenges and all :)