It can be tempting to withdraw from life. It can be tempting for anyone, but with a disability, especially one that is aggravated by activities, to cut back on commitments, outings, and even friendships. I learned that I am not a lazy person when I first had complications where doctors advised rest. Sitting still drives me a little crazy. So it returns to balance. And risks. Allowing for a little wildness so that each day dawns with vibrant colors. If I took the safe restful road, I would not have children. I would not travel. I would not embark on the seemingly crazy adventures. Yet the variety of life makes the struggles a lot more bearable. Sitting around thinking of all the inaccessable activities is a sure road to depression.
So live. Disability or no disability, take the risks, leap, enjoy each incredible day. We need a little wonderful exhaustion. Easy doesn't always mean happy. :)